His appointment went great - his doctor was happy with everything! I had a question about Josh's physical limitations as well as the possibility of future scoliosis. Children with this syndrome lack abdominal muscles so they have a higher chance of back problems. His doctor thought it would be a good idea if Josh had a visit with an orthopedic specialist. We got an appointment a few short days later.
Josh's main doctor's have all been from DuPont Children's Hospital. To say I absolutely adore this hospital would be an understatement. I remember once when Josh had a completely unexpected overnight stay at this hospital (it is not around the corner)- volunteers from the Child Life Center brought him in games & toys & even a beautiful new quilt. It was so nice and it made his stay more comfortable and mine less nerve racking!
It has become our Christmas Tradition for the last 4 years to bring toys back to the Child Life Center. This is a place upstairs in the hospital- there are air hockey tables, TVs, games, crafts, books & more. It gives the kids that are staying in the hospital a place to go. It's nice for them to get a break from their rooms. If they are unable to leave their rooms the volunteers will bring fun things to them!
Don't you love these snowmen with mouth masks on!
Then we have our latest tradition . . .