I honestly didn't realize how much I could love someone until I had Josh.
He makes me laugh SO hard, you never know what is about to come out of his mouth!!!
He loves going super high on the swings, staying up late, ice cream, his best buddy Nicholas, tacos & bowling. He loves to sing & he loves music . . . he even makes up his own songs on his keyboard.
Have I mentioned he is a genius:)
Even though he is perfect to me, I know- just like any child- he has his moments . . . he is bossy & he is a sore loser. But under all that he is sweet, he will snuggle up next to you and whisper, "I love you" in your ear. Just the other night he looked up at me and said. "thank you for taking me to so many fun places" . . I cried of course.
Did I mention he was born with crazy hair?!?
I write posts about Josh a lot. Since starting this blog I may have mentioned the true miracle he is to me, but I never fully explained it.
This was Josh January of 2005, he was 5 months old . . .
He just had a 7 hour operation and was in the PICU at an amazing Children’s hospital in Delaware.
Of course I was camped out for weeks, praying & waiting to take my baby home.
Josh has a rare condition called Eagle-Barrett Syndrome (aka Prune belly syndrome)
It is basically a deformation of the Urinary Tract
The incidence of this syndrome is about 1 in 40,000 births;
95% of cases occur in males.
Out of all the births:
20% of patients are stillborn,
30% die of renal failure or urosepsis within the first two years of life,
and the remaining 50% have varying degrees of urinary pathology.
(all info found on the PBS site)
When I was pregnant I told there was a large chance that I was not going to have Josh
The doctor even talked to me about having an abortion
When Josh was born I was told that he was going to be chronically ill...
Josh has over come so much in his short life.
And by the grace of God, I continue to pray for Josh’s healthy future. Like with anything, there is always chances of complications . . .the first 2 years of his life were filled with emergency room trips, doctors appointments, ultra sounds, 2 surgeries & lots of physical therapy. & There is a chance that he will one day need a kidney transplant in the future. I could write for days on what Josh has been through. But for now . . .he is doing well-PRAISE THE LORD! He is a healthy & happy little boy and words can not express how completely grateful I am to be able to write that . . . I thank God everyday for Josh & I cherish every second I can with him . . . when I see those blue eyes greet me good morning everyday it is a reminder . . .
"For nothing is impossible with God."